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dc.contributor.author Read, Kevin B.
dc.contributor.author Ganshorn, Heather
dc.contributor.author Rutley, Sarah
dc.contributor.author Scott, David R.
dc.date.accessioned 2021-12-14T17:11:23Z
dc.date.available 2021-12-14T17:11:23Z
dc.date.issued 2021
dc.identifier.citation Read, K. B., Ganshorn, H., Rutley, S., Scott, D. R. (2021). Data-sharing practices in publications funded by the Canadian Institutes of Health Research: A descriptive analysis. CMAJ Open, 9(4). en_US
dc.identifier.uri https://hdl.handle.net/10133/6108
dc.description Open access article. Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License (CC BY-NC-ND 4.0) applies en_US
dc.description.abstract Background: As Canada increases requirements for research data management and sharing, there is value in identifying how research data are shared and what has been done to make them findable and reusable. This study aimed to understand Canada’s data-sharing landscape by reviewing how data funded by the Canadian Institutes of Health Research (CIHR) are shared and comparing researchers’ data-sharing practices to best practices for research data management and sharing. Methods: We performed a descriptive analysis of CIHR-funded publications from PubMed and PubMed Central published between 1946 and Dec. 31, 2019, that indicated that the research data underlying the results of the publication were shared. We analyzed each publication to identify how and where data were shared, who shared data and what documentation was included to support data reuse. Results: Of 4144 CIHR-funded publications identified, 1876 (45.2%) included accessible data, 935 (22.6%) stated that data were available via request or application, and 300 (7.2%) stated that data sharing was not applicable or possible; we found no evidence of data sharing in 1558 publications (37.6%). Frequent data-sharing methods included via a repository (1549 [37.4%]), within supplementary files (1048 [25.3%]) and via request or application (935 [22.6%]). Overall, 554 publications (13.4%) included documentation that would facilitate data reuse. Interpretation: Publications funded by the CIHR largely lack the metadata, access instructions and documentation to facilitate data discovery and reuse. Without measures to address these concerns and enhanced support for researchers seeking to implement best practices for research data management and sharing, much CIHR-funded research data will remain hidden, inaccessible and unusable. en_US
dc.language.iso en_US en_US
dc.publisher Canadian Medical Association en_US
dc.subject Research data management en_US
dc.subject Data-sharing
dc.subject Canadian Institutes of Health Research
dc.subject CIHR-funded publications
dc.subject CIHR-funded research data
dc.subject Data discovery
dc.subject Data reuse
dc.title Data-sharing practices in publications funded by the Canadian Institutes of Health Research: a descriptive analysis en_US
dc.type Article en_US
dc.publisher.faculty Arts and Science
dc.publisher.department Library
dc.publisher.institution University of Saskatchewan
dc.publisher.institution University of Calgary
dc.publisher.institution University of Lethbridge


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